The Murray-Wood Foundation serves as support, education and as an advocate for patients and caregivers dealing with orphan diseases not limited to but including Ehlers-Danlos Syndrome, Arnold Chiari Malformation, Tethered Cord Syndrome, Syringomyelia and Mastocytosis/Mast Cell Activation Disorder as well as providing charitable giving to other non-profit organizations for research regarding said diseases.

Board Members


Patricia Wood Murray

President, Chairman,

Executive Director, Treasurer


Rita Barlow



Kolleen Barlow



Jimmy Greenspoon

Media and Public Relations


Lisa Mathis

Education Chairman

Tour America Concerts

Coming to a City Near You

Check Here For Schedule

Producer: John Anthony

What Is:


Ehlers-Danlos Syndrome?

Ehlers-Danlos National Foundation


Ehlers-Danlos Network



The Mastocytosis Society



Dysautonomia Network


Arnold Chiari Malformation?

Chiari and Syringomyelia Foundation


Latex Allergies

American Latex Allergy Association




Look To The Future

by Jimmy Greenspoon

from Three Dog Night





For more information, call Patricia Murray: 703.819.4619


or email:

A registered 501(c)(3) organization